The Canadian Sarcoma Research and Clinical Collaboration (CanSaRCC) is a group of physicians, scientists and other health care providers across Canada who have joined together to form a team to facilitate interdisciplinary scientific collaborations and perform clinical and translation research in sarcoma.
The Vision of CanSaRCC is to ameliorate the outcome for patients with sarcoma, by improving our understanding of the biology, treatment options and patient impact for sarcoma.
Our Mission is to develop a comprehensive bioinformatics national network that will capture high quality data, linked to a biorepository for quantity and quality research and survey.
Our multidisciplinary clinical and research team has developed a web-enabled registry, prospective clinical database and virtual biobanking to: 1) collect clinical data, and 2) provide access to biospecimens and other related information.
Our Canadian "Patient - Centered" Registry includes data from consenting individuals with sarcoma in Canada, in compliance with agreed inclusion criteria and delineations. We hope to use information collected to answer questions, including, but not limited to:
- Novel insights into disease biology.
- Design of new clinical trials.
- Understanding patient outcome – especially of rare subtypes of sarcoma.
- Quality of life.
- Molecular profiling.
CanSaRCC is supported by philanthropic funding through the Princess Margaret Cancer Foundation.
To help us improve the outcome for patients with sarcoma, please give today.
Patrick Wilson was diagnosed with metastatic embryonal rhabdomyosarcoma (ERMS) when he was 18 years old. At that time, he asked about the possibility of capturing information from all patients diagnosed with sarcoma across Canada. His hope is to ultimately improve the outcome of individuals diagnosed with sarcoma. Learn more about Patrick's story.
Canadian Sarcoma Research and Clinical Collaboration (CanSaRCC)
OPG, 700 University Avenue
7th floor, Room #7-714
Toronto, ON M5G 1Z5